In early 2019, the covid-19 pandemic led to may people living with sickle cell disorders (SCD) to be regarded as ‘clinically extremely vulnerable’ and advised to “shield” in order to reduce the risks. With COVID-19 disproportionately impacting upon racialized minority groups in the UK; with those with SCD already at risk of social isolation; and with their routine hospital care potentially disrupted, people with SCD then faced even greater challenges. A collaborative research project between De Montfort University; Leicester Royal Infirmary, OSCAR Sandwell and OSCAR Birmingham led to the production of these guides to ty to support the wellbeing of people living with SCD at these challenging times.
A Guide to Sickle Cell and Wellbeing (Word Document)
A Guide to Sickle Cell and Wellbeing (PDF Document)
We also published a report about our findings entitled, “Ask me if I am okay”: COVID-19 and the psychological and social impact of long-term shielding experiences of people with sickle cell disorders and their care-givers. We found that the general psychological health and wellbeing of people with SCD and their families was being neglected in services during the pandemic.